Abantu Abaphila Ne-Lupus Banokungenani Isitho Esikhulu Esithintekayo Izifo

Ocwaningweni lwakamuva lwamazwe ngamazwe, i-World Lupus Federation ithole ukuthi u-87% wabaphenduli bocwaningo abaphila ne-lupus babike ukuthi lesi sifo sithinte isitho esisodwa noma eziningi ezinkulu noma amasistimu wezitho zomzimba. Bangaphezu kuka-6,700 abantu abane-lupus ababambe iqhaza ocwaningweni oluvela emazweni angaphezu kwe-100.

I-Lupus yisifo esingamahlalakhona sokuzivikela komzimba esingadala ukuvuvukala nobuhlungu kunoma iyiphi ingxenye yomzimba lapho amasosha omzimba, ngokuvamile alwa nezifo, ehlasela izicubu ezinempilo esikhundleni salokho.

Cishe izingxenye ezintathu kwezine zabaphendulile zibike izitho eziningi ezithintekile, ngokwesilinganiso sezitho ezintathu ezithintekile. Isikhumba (60%) namathambo (45%) kwakuyizitho ezivame ukubikwa ukuthi zithinteke kakhulu ngenxa ye-lupus, ngaphezu kwezinye izitho ezithintekayo eziphezulu kanye nezinhlelo zezitho ezihlanganisa izinso (36%), i-GI/Digestive system (34%), amehlo (31) %) kanye nesistimu yezinzwa ephakathi (26%).

“Ngeshwa, abantu abaphila ne-lupus batshelwa ukuthi ‘ababukeki begula,’ kuyilapho eqinisweni belwa nesifo esingase sihlasele noma yisiphi isitho somzimba wabo sibangele inqwaba yezimpawu nezinye izinkinga ezinkulu zempilo,” kusho uStevan W. Gibson, umongameli kanye ne-CEO, i-Lupus Foundation of America esebenza njenge-Secretariat ye-World Lupus Federation. "Umsebenzi obalulekile we-World Lupus Federation kanye namalungu ayo usiza ukuqwashisa ngezinselelo abantu abane-lupus ababhekana nazo nsuku zonke futhi uletha ukunaka esidingweni sokusekelwa okwengeziwe emhlabeni wonke, okubandakanya abaholi bomphakathi nabakahulumeni ukukhulisa uxhaso lwezimali zocwaningo olubucayi. , izinsiza zemfundo nezeseka ezisiza ukuthuthukisa izinga lempilo yawo wonke umuntu ohlaselwe yi-lupus.”

Phakathi kwabaphenduli benhlolovo ababika umthelela wezitho zomzimba, ngaphezu kwesigamu (53%) balaliswe esibhedlela ngenxa yokulimala kwezitho ezibangelwa i-lupus kwathi ama-42% atshelwa udokotela ukuthi ngenxa ye-lupus banokulimala kwesitho esingalungiseki.

Umthelela we-lupus emzimbeni udlula izimpawu ezingokomzimba. Iningi labaphendula (89%) libike ukuthi ukulimala kwesitho esihlobene ne-lupus kuholele okungenani inselele eyodwa ebalulekile kukhwalithi yabo yempilo, efana nale:

• Ukubamba iqhaza emisebenzini yezenhlalo noma yokuzijabulisa (59%)

• Izinkinga zempilo yengqondo (38%)

• Ukungakwazi ukusebenza / ukungasebenzi (33%)

• Ukungavikeleki kwezezimali (33%)

• Izinselele zokuhamba noma ezokuthutha (33%)

"Ingxenye enkulu yomhlaba ayijwayele i-lupus futhi ayiqondi ubuhlungu esihlala sibhekana nabo noma ukungaqiniseki kokuthi yisiphi isitho noma ingxenye yomzimba wethu i-lupus ezohlasela ngokulandelayo," wabelane ngoJuan Carlos Cahiz, uChipiona, eSpain, owatholakala ene-lupus ngo-2017. . "Lokhu okutholwe kunhlolovo kugcizelela umthelela omkhulu i-lupus ezimpilweni zethu nokuthi kungani kufanele kwenziwe okwengeziwe ukuze kuqwashiswe ngalesi sifo, futhi kuthuthukiswe ucwaningo nokunakekelwa."